Search results for "Patient rights"
showing 5 items of 5 documents
Return and Disclosure of Research Results: Parental Attitudes and Needs Over Time in Pediatric Oncology.
2017
Objectives To explore parental attitudes regarding the return and disclosure of research findings in pediatric cancer trials over time. Study design Two surveys were set up to evaluate the stability of parental attitudes. One survey was carried out among 581 parents whose child was diagnosed recently (response rate, 53.5%). A second, population-based survey was set up with a time interval of 4 years between first cancer diagnosis and survey in which 1465 parents were included (response rate, 55.1%). Results Almost all surveyed parents stated a parental right to receive aggregate research results. Fifty-five percent of the parents who recently participated in trials and 62% of those asked af…
COVID-19 Contact Tracing and Data Protection Can Go Together
2020
We discuss the implementation of app-based contact tracing to control the coronavirus disease (COVID-19) pandemic and discuss its data protection and user acceptability aspects.
Market empowerment of the patient: the French experience.
2011
Through analysis of the French experience, this article explores the way economic policy has sought to encourage active, well-informed patients by giving them market power. The new status of the patient as consumer is based on two foundations: the endeavour to build a healthcare market and the activation of demand-based policies. The keystone of this new system is a conception of the market as a process constructed by economic policy. Recent measures such as the standardization of care and the introduction of incentives to respect a treatment pathway then constitute effective levers to establish a free-market rationale.
Sind gehörlose Patienten in Deutschland über ihren gesetzlichen Dolmetscheranspruch informiert?
2012
Gehorlose Burgerinnen und Burger stosen in einer von Horenden gestalteten gesundheitlichen Versorgung auf Barrieren. Der Gesetzgeber hat daher die Finanzierung von Gebardensprachdolmetschern zulasten der Krankenversicherungen vorgesehen. Die vorliegende Studie untersucht erstmals, inwieweit Gehorlose daruber informiert sind und Gebrauch von Dolmetschern machen. Herkommliche Erhebungen basieren auf Laut- und Schriftsprache und sind fur die Zielgruppe eher ungeeignet. Daher wurde eine Online-Querschnittsstudie durchgefuhrt, die mittels Gebardensprachvideos und visuell ausgerichteten Antwortmoglichkeiten eine barrierefreie Teilnahme ermoglichte. Mit einer multivariaten Analyse wurden Faktoren …
[Recommendations for end-of-life care in patients with chronic obstructive pulmonary disease].
2009
Over the last 20 years, advances in the treatment of patients with chronic obstructive pulmonary disease (COPD) have improved survival even among patients in the most advanced stages of the disease, such as those requiring domiciliary oxygen therapy.1,2 This improvement—in principle a positive development—has given rise to considerable clinical problems associated with the establishment of a therapeutic ceiling and the difficulty of determining prognosis in some of these patients. In this situation, the clinician should consider introducing palliative care, that is, care aimed at improving symptom control, communication, physical activity, and emotional support, in order to achieve the best…